Showing posts with label operation goodbye hemangioma. Show all posts
Showing posts with label operation goodbye hemangioma. Show all posts

Tuesday, June 21, 2011

World of Wonder

Day 41

We've seen a lot of changes in 41 days. 

C has learned to hold her head up, to grasp toys, and, just this morning, to roll over. She is teething, a constant stream of drool flowing from her mouth and a tiny fist trying desperately to provide some relief. She no longer wants to be on her back, but instead wants to sit upright any way that she can, and in true C fashion, will let you know how she feels!

Still the bright and cheery morning person, she squeals and "talks" constantly, recently adding consonant sounds to her babbling. She is wearing size 3 month clothing and has almost grown out of her footed pajamas with those long legs of hers. She smiles all the time and is wide eyed most of the day, taking in the world around her.

We've introduced Baby Einstein videos as she can finally watch them without falling asleep. She helps me turn the pages (well....sort of...) when we read books, exploring new sensations with her fingers. She would sleep straight through the night if I didn't have to wake her at 11:30 for a dose of medicine. At nearly four months old, she is growing up so very fast.

Among all these changes, we've watched the hemangioma shrink day by day. The dose of propranalol is still 0.4 mL three times a day, but will most likely increase after her appointment next week. The changes have been slow, but visible, and there isn't a day where we regret going through with this treatment:

Day 1: Day 39 profile: Day 41

The progress has definitely slowed, but we can still see that the bump is much smoother and smaller now and the coloring overall is beginning to gray, which Dr. Theos told us was the first sign of the medication working. There seems to be less pressure on her left eye and eyebrow when she smiles and this will hopefully continue to get better over time. Hopefully, C's weight gain will allow us to increase her dosage over the next couple weeks. Once the dose is 0.8 mL three times a day, the changes should be much faster. Regardless, we are so happy to watch this treatment work before our eyes and are so very grateful for such a great doctor so close to home.

We will know more after our appointment next week. Until then, we will continue to watch her grow and change before our eyes and love every single minute of it.

Thursday, June 9, 2011

A Little Something Extra

Yesterday, C turned 15 weeks old. For those who don't have children, she's 3 1/2 months old. Apparently, once you give birth, you then measure the child's entire first year in weeks. It seems odd, but each week is so very different. The things she is doing in her third week of month 3 are so different than the first week. I know it's silly. I'm a recent convert. (Prepare to be annoyed when I measure the second year in months).

But C was born 4 1/2 weeks early. Often I forget this little tid bit as I read all of the mommy blogs and books and emails out there that are telling me what my child should or shouldn't be doing by now. I was reminded of this factor while doing some light reading last night: Healthy Sleep Habits, Happy Child. The issue of sleep has been upon us recently as I have contracted my second bacterial infection in a one month span and often go entire days without remembering to drink water in between my coffee(s). I'm a little sleep deprived to say the least.

Operation Goodbye Hemangioma continues to go smoothly, but this also means that I continue to administer medication exactly every eight hours. The third dose of the day falls at 11:30 pm and the interruption in C's sleep tends to effect the whole sleeping-through-the-night thing.

So I consulted the book in hopes of a brilliant answer. Instead, I learned that C just might not be ready to sleep through the night yet, and that no amount of rice cereal or sleep training will change her inherent need to wake up at 4:30 am for a little mommy time.

It then occurred to me. I get an extra month.

Yes, I have to suffer through an extra month (at least) of middle of the night feedings and sleep deprivation; but I get to have an extra month (at least) of middle of the night feedings. Those sweet groggy moments of feeding and snuggles that will be gone all too quickly. I get a little extra time.

It is difficult to see my happy, healthy child as a preemie. She is stubborn and determined to her core and it is easy to forget that this strong willed little girl was once only 5 pounds. Today, she struggles to sit up, crying if I place her flat on her back for even a moment. She lifts her head with assurance and smiles a huge gummy grin when she succeeds. She is so very big in my eyes, yet still so very small. And as she grows and develops each day, I take pride in how far she has come, throw the rule books out the window, and relish the little something extra I get as the mommy of a preemie.

Thursday, June 2, 2011

Size Matters

14 weeks

It's all about size lately. How big is she now? How much is she eating? How much medicine is she taking? How long is she sleeping? How....how....how...?

How big? Too big! I blink my eyes and she gains an ounce, grows 1/4 of an inch. She has grown out of newborn diapers and I have packed away a box full of newborn onesies and footed pajamas.

How much is she eating? Enough to keep me in my day job of cleaning and making bottles. 

How much medicine? Enough to make a difference on day 22 of OGH:

Day 1 - Day 22
Side note: is there anything sweeter than a sleeping baby?


How long is she sleeping? Long enough for me to finish one load of laundry, start a load of dishes, attempt to make the house not look like a small explosion just went off, and grab just enough sleep to allow me to hazily function the next day.

As I rocked my nearly 12 pound (12 pounds!) baby to sleep tonight, struggling to still cradle her like a newborn, my arm tingling beneath her weight, I was painfully aware of her size and how rapidly it is increasing. I sleep for 4 hours and wake up to find a beautiful little morning person, more expressive than the day before. I blink and my three month old is teething. I turn around and she is nearly holding her head up on her own.  Where is the time going?

Along with all the other unsolicited advice you receive from complete strangers as a new mom, is the warning that they grow up much too fast. Well, random lady in the Target checkout line, you were right. I look at my sweet little three month old and realize that she is already one quarter of a year old! She has been in this world for 14 weeks in which she has learned to make playful noises, to smile, to follow the sound of my voice. She can push her tiny body up on her tiny little arms when on her tummy, and can grab toys and purposefully put them in her mouth. 

Each day she evolves more and more into the person she is supposed to be. At 14 weeks old, I can already tell she is stubborn like her Mommy, but easygoing like Daddy. She is dramatic (her god-given right as the first born) and has us wrapped around her little finger. She likes bright lights and mirrors and kisses on her chubby little cheeks. She's ticklish. Mommy's bedtime stories put her to sleep while Daddy's make her ready to play. We've already learned so much about this precious little girl yet still have so very much to discover. 

It's difficult to believe that 14 weeks have passed by already and that our once 5 pounds, 2 ounces daughter is now nearly twelve pounds and that the same little girl who was once swallowed by preemie clothes is now wearing size 3 months. While our daughter grows and changes each day, so does our world, living as if we ceased to exist before her and never looking back. We have grown from a family of two to one of three and that size matters most of all.